Working Group Webinar Library

We look back at the decade of effort to build, operate and grow the TriNetX strategic platform found in research informatics portfolios of many healthcare organizations and academic medical centers world-wide.

Patient reported outcomes (PROs) include any report of the status of a patient's health condition that comes directly from the patient, without interpretation of the patient's response by a clinician or anyone else. PROs for functional status information describes the patient's physical and mental wellness at the whole-person level (as opposed to the cellular or organ level).

Acute kidney injury (AKI) is a life-threatening clinical syndrome prevalent in hospitalized patients (10% to 15% affected), especially among critically ill patients (>50% affected), and has exceeded the annual incidence of myocardial infarction. AKI patients are at much higher risk for developing poor long-term outcomes including incident and progressive chronic kidney disease, cardiovascular disease, and death.

High-dimensional data from procedural recordings are increasingly being leveraged by institutions for quality, safety, and efficiency. With advances in technology enabling high fidelity recordings and large scale analytics, the possible applications for this data continue to expand. Institutions must consider their data strategy and the ethical, legal, privacy, and insurance implications of recording clinical procedures.

An increasing number of studies have reported using natural language processing (NLP) to assist observational research by extracting clinical information from electronic health records (EHRs). Currently, no standardized reporting guidelines for NLP-assisted observational studies exist. The absence of detailed reporting guidelines may create ambiguity in the use of NLP-derived content, knowledge gaps in the current research reporting practices, and reproducibility challenges.