Navigating normalcy: designing personal health visualizations for pediatric kidney transplant recipients and caregivers.
Patients with chronic illnesses, including kidney disease, consider their sense of normalcy when evaluating their health. Although this concept is a key indicator of their self-determined well-being, they struggle to understand if their experience is typical. To address this challenge, we set out to explore how to design personal health visualizations that aid participants in better understanding their experiences post-transplant, identifying barriers to normalcy, and achieving their desired medical outcomes.
Author(s): Jeffs, Lily V, Dunbar, Julia C, Syed, Sanaa, Ng, Chelsea, Pollack, Ari H
DOI: 10.1093/jamia/ocae206